Discussing the Inheritance Pattern for Bohring-Opitz Syndrome

Taylor GurganusMay 3, 2018Bohring-Opitz Syndrome, BOS Comment

2nd Annual BOS Family Meet-Up in Philadelphia

The BOS Foundation hosted the 2nd Annual BOS Family Meet-Up in Philadelphia on July 29th. Fourteen families were in attendance and all had a wonderful time of fellowship and networking with others in the BOS community. Click here to read more.

Guest UserAugust 19, 2017Bohring-Opitz Syndrome, BOS, BOS Family Meet-Up, Patient SupportComment

Spotlight on BOS Foundation Co-Founder, Taylor Gurganus

Guest UserAugust 4, 2017Bohring-Opitz SyndromeComment

Bohring-Opitz Syndrome Foundation: 2016 Year in Review

Bohring-Opitz Syndrome, Rare DiseaseGuest UserApril 11, 2017Bohring-Opitz Syndrome, Rare DiseaseComment

Bohring-Opitz Syndrome Highlighted at ACMG

Bohring-Opitz Syndrome, Rare DiseaseGuest UserApril 10, 2017Bohring-Opitz Syndrome, Medical Advisory Board, Rare DiseaseComment

Awareness Day Is April 6th: What Can I Do?

Rare Disease, Bohring-Opitz SyndromeGuest UserApril 4, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

Ultra-Rare Syndrome Celebrates Its Day in the Spotlight

Rare Disease, Bohring-Opitz SyndromeTaylor GurganusApril 3, 2017BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical FeaturesComment

BOS Advocates Participate in Rare Disease Events

Bohring-Opitz Syndrome, Rare Disease, AdvocacyGuest UserApril 2, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

BOS Foundation Partners with RARE Science for Awareness Day

Bohring-Opitz Syndrome, Rare DiseaseGuest UserFebruary 16, 2017BOS, Bohring-Opitz Syndrome, Rare Disease, Raise AwarenessComment

We're Partnering with The Mighty!

Bohring-Opitz Syndrome, Rare DiseaseGuest UserFebruary 3, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

Bohring-Opitz Syndrome Receives International Attention

Bohring-Opitz Syndrome, Rare DiseaseGuest UserJanuary 31, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

Position Opening - Director of Fundraising

Bohring-Opitz SyndromeTaylor GurganusJanuary 14, 2017BOS, Bohring-Opitz Syndrome Comment

Introducing the latest three members of our Medical Advisory Board!

Taylor GurganusJuly 27, 2016Bohring-Opitz Syndrome, Medical Advisory BoardComment

Welcome Dr. Young!

Taylor GurganusJanuary 23, 2016Bohring-Opitz Syndrome, Medical Advisory Board Comment

2015 is coming to an end...

December NewsTaylor GurganusDecember 17, 2015Bohring-Opitz Syndrome, Get InvolvedComment

Welcome Dr. Wen-Hann Tan

Taylor GurganusDecember 9, 2015BOS, Bohring-Opitz Syndrome, Medical Advisory Board, Rare DiseaseComment

Raising awareness by public speaking!

Taylor GurganusNovember 9, 2015Bohring-Opitz Syndrome, Raise Awareness, BOS, Speaking, Special NeedsComment

CHOC Walk 2015 - Spreading Awareness

October NewsTaylor GurganusOctober 11, 2015Bohring-Opitz Syndrome, BOS, Raise Awareness, Special NeedsComment